Stevens-Johnson Syndrome (SJS) is one of the focal points of a rare disease research goal that is set for 2020, according to an article that was posted on Medical News Today . The article was based on a new research goal that was discussed during a meeting with the European Delegation to the United States.
Right now there are many different organizations that are trying to raise money for the research of rare diseases. To date, there are more than 7,000 rare conditions and now there is also a goal set to help get proper treatment for at least 200 of them by the year 2020. While some conditions are at least commonly heard of, there are some that only affect a small number of people in the world. Stevens-Johnson syndrome came up in the discussion as one of them.
The European Delegation to the United States commented on the research goals by stating, “Today, the diagnosis for most patients affected by rare diseases remains a challenge and most are lacking dedicated therapies. Recent progress in human genomics and other scientific advances increases the prospect for developing effective interventions. Progress will require increased coordination and renewed efforts among multiple stakeholders across the world. Over the last days a group of research funders, patient advocacy groups, researchers, industry and regulatory agencies continued their work at the second meeting of the International Rare Disease Research Consortium, IRDiRC. The success of this meeting was the endorsement by many stakeholders of objectives to deliver by 2020 diagnostic tests for all rare diseases and 200 new therapies for patients affected by rare diseases.”
The right research on Stevens-Johnson syndrome could help thousands of sufferers to get better treatment for the condition, as well as a faster diagnosis. The disease is often misdiagnosed as herpes or dermatological conditions. If you are suffering from SJS contact SJS attorney Greg Jones today for a free consultation. I am experienced at fighting SJS lawsuits, and may be able to help you get compensated for your injuries.